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cousin has this. theyve offered him medical bud but hes a mormon so thats a no no
but he deals with it really well, im surpised that you just found out about it cuz he's known about it his whole life. also the disease has stunted his growth but he took hormones to to grow he's like five eight now. also it its a hereditary diease too.
he's like 25 and still manages to ski about 6 days a week. theres a whole bunch of research goin down about this.