I met someone with this once, his skin was all stretchy. out of all the odd disorders you can end up with, I don't think this is that bad. my friend has a slight form of this, he's more prone to dislocations. he dislocated his patella by standing up a funny way while in a car.
well shit, i see your scoliosis thread down there too. I'd like to think that they're related somehow but last I recall, there's not really one direct cause for scoliosis. although i'd also like to think that this may have affected the discs in your spine? or at least the structures around it.